Home now, and despite the fact that I'm supposed to be at a two-day conference in a part of the country I call Upper Buttfuck (I hated the place before this even happened, and now I really hate the place) and although I've left messages for my boss I worry that he's angry I'm not there, I'm glad I chose to stay home. A four hour train journey (each way!) and a stayover at the Holiday Inn, which is the only hotel I could find a room in Upper Buttfuck in, do not a comfortable stay make.
We went to the clinic in London late yesterday afternoon. We're glad we left early for the appointment because parking at the NHS hospital was something primal, a blood sport for the driving population. I'm convinced there were cameras about videoing drivers as we became animals in our quest to just find a bloody parking spot (When Drivers Become Cavemen! Watch what happens when a little old lady pauses to put a mint in her mouth, she's taken out WWF style! Live tonight at 7pm on th WB!). People walking in the car park were relentlessly stalked by those expecting them to free up a parking spot, I fully expected other drivers to get out of their cars and bang on hoods of their vehicles with femurs, a la Caveman extraordinaire. After hanging out and waiting for a young mother to put her twins away in a car (and nearly coming to vehicular blows with another driver who was going to race us for the spot), we finally parked up.
My nerves were shot long before the parking escapade. They were in real tatters after that.
The hospital itself was crazy busy, which I took comfort in. To me, a hospital should be busy. If they're not busy, how do I know they're not in the back turning prospective patients into Soilant Green? We make our way into the information desk to ask for directions. We are directed to walk some distance until we make our way to Northern Wales, otherwise known as the Great-Long-Walk-To-Fetal-Medicine. When we get there we check in and wait. The only periodicals are child rearing magazines, or else we can watch an extremely snowy TV showing Diagnosis Murder. We chose Diagnosis Murder. The alternative felt like an uncomfortable jinx.
When the doctor calls us in, he's a very kind, very soft-spoken man with a long, unpronouncable Greek last name. He tells us to call him by his first name which is short and easy to pronouce, so we assume he's used to yuks like us being unable to say his last name. A fetal medicine midwife joins us. The doctor, it turns out, is a Senior Fellow at the hospital, which as it's a teaching hospital it means he's not only a doctor involved with patients, but he's a professor/senior lecturer. I took great comfort in that. I suppose if the doctor was a real quack, he wouldn't be in that kind of position, and during our appointment he spoke at length to us in calm and easy tones. He spent well over an hour just working with us alone.
He went through every one of my questions, which I'm including here in the extended post in case anyone goes through this and needs answers themselves, because Google will drive you mad trying to find people who may have the same questions you do.
The nice doctor scanned me again.
Both babies are growing fine-in fact, growing a lot! Twin 1 is now 69mm and Twin 2 is 73mm. He showed us all the component parts of the Lemonheads, and I'm happy to report they both have the correct number of arms, legs, fingers, thumbs, and toes. Their heartbeats were perfect and their body structures were, he said "right on target". He pointed out the bladder, stomach, etc, but it just looked like a a fuzzy image to us, like he needed to adjust the aerial or something.
So the numbers, which he cautioned us are less reliable than the numbers we had last week simply because the twins are both considered too old for a very sound NT scan (he said it should be done 11-12 weeks, 13 weeks pushes the results to less than certain), are:
Twin 1 - Down's risk has gone from 1:598 to 1:898.
Twin 2 (our worry twin) - Down's risk has gone from 1:124 to 1:90.
If I was on the fence about testing at 1:124, I fell right off the fence and landed headfirst into that cow patty known as reality.
As far as testing he felt an amnio at 16 weeks was our best bet, as he said it's safer and twin parents generally want results on both babies. He described the procedure to us, but considering how the twins are placed, our risks are higher than usual-the twins' placentas are nowhere near each other, which we were told is unusual in twin pregnancies (my Lemonheads. Already taking the road less travelled.) Twin 1's placenta is buried in the uterus towards the posterior, so it's facing my back. Twin 2's placenta is right near the top of the uterus and is the closest thing to the outside of my stomach. An amnio would have to go through Twin 2's placenta, into the sac, get fluid, somehow manipulate around Twin 2, change syringes at the top of the needle, then go straight through Twin 2's sac, through the twin membrane, and into Twin 1's sac. This did slightly increase the risk of infection and of twin-to-twin contamination.
It also seriously freaked me out.
I pictured Twin 2 deflating like a badly managed water balloon.
An amnio for twins carries a 1% miscarriage risk, and at 16+ weeks if one did have Down's and we chose to reduce, the risk for total miscarriage came to 15%. If we did a CVS, the miscarriage rate is 2% (1% per twin), but if we chose to reduce should the results come out badly, the total miscarriage rate is "only" 5%. But a CVS wouldn't be possible for both twins-for Twin 1, the placenta was so far out of the way it would be impossible to get to.
Aidan and I discussed it. Honestly, while we both love and feel concern for both twins, we are mostly worried about Twin 2 right now. At 1:598 or 1:898, Twin 1 has betting odds that we will take. 1:90 is too high even for me and I knew I couldn't wait 4 weeks to test, it would play on my mind like a bad Barry Manilow song for the entire wait. So even though the doctor told us it was unusual, we elected to just test the one twin via CVS.
We had the CVS yesterday on our Twin 2. We both honestly felt all signs pointed to it. The placenta for Twin 2 was (in the doctor's words) extremely easy to get to for a transabdominal CVS procedure. the doctor was highly experienced in that he averaged 6-7 CVS a day. He said it would be simple to do as I was thin (seiously, I've gained 5.5 kilos since getting pregnant. I felt raw, honest love for the doctor when he said that). We felt the 1:90 risk was just too significant to overlook.
I shook like a crack addict on withdrawal.
We signed consent forms. More midwives came in to assist. Just as we were getting ready, me lying flat and worried on the table, the power went out. When it came back on, we waited for it to reboot.
I stared at the screen. "A power cut doesn't exactly instill great confidence in me, you know," I laugh nervously. They laugh with me. I was only half kidding.
The power came back on. The doctor took one of my hands and clasped it to the inside of his elbow for me to feel reassured. With my other hand gripping Aidan's so hard it was cutting off circulation, I can confess I did indeed feel reassured. "Ready?" the doctor asked.
"Yes. And, um, I know other women who have this procedure done want you to be careful and don't want anything to happen to their babies, but I want my babies even more than them, so please be careful." I whimper. And I know it's a hideously unfair thing to say, I'm sure those of you with babies want yours as much as I do, but still. It was desperate times. I would have sacrificed goats to ensure my babies made it ok. And I'm a pacifist. And a vegetarian. I'm truly crunchy granola.
He inserted the needle. I didn't get anesthetic because really-what's the point? Anesthetic is just topical, it never reaches the uterus, where the real party is going on. He inserted the needle like a javelin or a dart, it went in fast and hard. In retrospect I think doing it that way was easier than slowly inserting it, but it feels pretty strange to be a part of the Fetal Olympics. The other needle got threaded through the javelin, and he made jabbing motions in the placenta, much like you do when you've reached the bottom of your snow cone and you jab at the ice to break it down so it can fall into the goopy syrup. The ultrasound showed he didn't come close to the baby, but stayed only in the placenta.
It was not a painful procedure, but it was very uncomfortable. You feel instant period-like cramps that are pretty strong, and the idea of a needle that big close to something you care about does make one's bowel threaten to loosen a bit. I wouldn't ever want the procedure again but it really wasn't as bad as I'd feared it would be.
We were done quickly. The miscarriage rate does come from infection, but the doctor said most doctors can generally tell when the procedure has gone well or is potentially at risk. He said our CVS was easy and clear-cut, so actually he puts our miscarriage rates at less than 1%. If I am going to miscarry, it will happen in the next 5 days, so I'm on alert for any signs of infection or fever or excessive bleeding or cramping or anything that automatically worries any hypochondriac at all. If I show any signs, I am to get thee to the Central Delivery Suite at our hospital for emergency antibiotics. In the meantime, I'm on rest for today.
The results will come in on Monday about the Down's aspect, but the full results will take several more weeks. Although we want to know the full results, it's the Down's part that we are focussing on at the moment.
I honestly feel ok about the test and I think it was the right decision. I am not spotting blood or amniotic fluid at all (knock on wood), and although I am still cramping it's managable with paracetamol. I feel optimistic that I won't miscarry-perhaps this is a mistake to be so positive, but the doctor truly was absolutely excellent and the procedure itself was clear and concise, aided by the fact that I could see it all myself on the ultrasound. I will look forward to Monday, though-I'd like the results as soon as we can. And we have another visit to our midwife on Tuesday, where I will beg/bribe/throw a tantrum/blackmail them to see if they can just quickly look in on the Lemonheads and make sure they're ok.
At the end of the scan the doctor played their heartbeats for us. It was the first time we've ever heard them, and they were amazing. No sign of fetal distress, no irregularities, and just the right tempo. They sounded like a washing machine drum in the middle of the suds cycle.
They sounded perfect.
Let's hope that they are.
PS-a good friend of mine who just had a miscarriage (after ages of the fun of infertility) has just started a blog. Go say hi, and lend some encouragement. She's hilarious and I love her, so hopefully you'll love her too.